If you've emailed me and I have not replied, it's because my email program crashed. Will reply as soon as I can! I know several have requested PROGRESS questionaires, I will get them to you as soon as I can!
My web site is devoted to medical and treatment information about this rare cancer. My blog is devoted to sharing what has been the more difficult part of the journey for me, the emotional and spiritual road I've traveled as a rare cancer survivor.