My web site is devoted to medical and treatment information about this rare cancer. My blog is devoted to sharing what has been the more difficult part of the journey for me, the emotional and spiritual road I've traveled as a rare cancer survivor.

Saturday, May 14, 2011


We are leaving for Washington DC tomorrow, our latest family vacation.  I'm glad we do that,we have a tradition of taking a week every year to go somewhere else as a family.  My kids are adults now, but still like our family time.  Lots of adventures!

Washington DC was my idea.  I've been there twice...once for an AACR conference and once to work on Capitol Hill with the PEW Foundation.  I'd never wanted to go to interest in politics or history, but the first time I went for the AACR conference, I fell in love with the city.  There are so many stories and so much trivia about the city that is fascinating. Twenty Smithsonian museums, all free.  It's a beautiful and clean city, with sculpture gardens and works of art everywhere.  I decided my husband and kids need to see DC at least once in their lifetime!  The last two times I missed the U.S. Horticultural Gardens and the Nation Zoo...we'll see them this trip...giant pandas!  I love that you can almost cross the streets and be in a different state.

We fly out tomorrow.  Another cool thing is that my ten year cancer-free anniversary will be while we are there...on the 16th.  Best way to celebrate it with the people who mean the most to me!  Can you believe I'm almost  decade past a terminal diagnosis???


Judy said...

Congrats Carolyn!!! Enjoy your trip and family togetherness! You are an amazing person giving all of us inspiration. Thank YOU! Judy

Karen Ebert said...

Hi Carolyn,
Congratulations on ten years. Very happy for you.
I keep you bookmarked, and pop in from time to time. I've communicated with you before, and thought I'd give you an update - sadly not such a positive one. I was diagnosed with stage IV signet ring appendix cancer in November of 2007. It recurred at 2 and 1/2 years, six more months of chemo. It recurred again at 3 and 1/2 years. We are now talking palliative. I've done some serious medical journal reading, and I can see that even the specialists say that two markers make for the worst prognosis: signet ring morphology and lymph node involvement. Two for two.
Keep up the good work you do - in a world swimming in pink ribbons, it helps to find anyone out there with the same diagnosis.

Alice R. said...

Mazel tov on a great anniversary! Looking forward to your 20th!

Alice R. said...

Mazel tov on a significant anniversary! Looking forward to your 20th and beyond!

Linda Weinstein said...

I was diagnosed with stage IV lung cancer in October 2013. In December my doctor was pressuring me to get one of my lung nodules removed and begin chemotherapy as soon as possible. I wanted to wait it out just a little bit longer, I guess my intuition was telling me something. While browsing online I stumbled upon Rick Simpson's Oil and was very interested. It seemed unreal, It was very hard to believe but I bought his book and read it cover to cover. Wow, that is all I could say. The things I read flipped my understanding of nutrition and cancer upside down. And my doctor never told me any of these things.I ordered for his oil at: and was delivered to me within 48 hours here in the US, I started the protocol the same day after finishing the book. A few days later I woke up and I had no pain in my side, that was interesting. Two days later I could walk outside for a good half an hour and not get fatigued. My health was improving so fast I actually couldn't believe it. A week later I sent my HCG urine test in and it went down by 5 points!! I had to get these results tested with my doctor just to be sure. I scheduled an appointment, did my scans, and guess what. Two of my tumors had disappeared, and the third one was half the size, this is in three weeks after starting the protocol. One month later my doctor officially pronounced me cancer free. I owe my life to you RICK SIMPSON and I thank you dearly. I will pass this information to everyone I know and I hope all those suffering from cancer know that it's not the end, there is a way!

Anonymous said...

When I found out that I had cancer, I decided that I was going to make cancer the best thing that ever happened to me, not the worst. At 39 years old I was diagnosed with stage IIIB breast cancer and had a double mastectomy. I’d been told the cancer had spread to my lymph nodes and bloodstream, and I had a 49 percent survival rate. I was not about to accept those odds! My husband, Michael, had lost his dad to colon cancer two years earlier and he was determined it wasn’t going to happen to me. He went online and learned about the Rick Simpson's Oil and we were able to get to him at: in 2 days we were able to get the oil. I started treatment immediately within 3 months my cancer disappeared.There are many truths I have learned along the way of my cancer journey. It hasn’t always been fun and it certainly hasn’t been easy, but I feel that I am a better person for it. I never could have made it without the support of my family, friends and all of the people I met during my treatment. I believe that modern medicine truly is a miracle. Recovery does not happen in a day, a week or sometimes even a month. Listen to your body and your gut—and you will find the care you need.