My web site is devoted to medical and treatment information about this rare cancer. My blog is devoted to sharing what has been the more difficult part of the journey for me, the emotional and spiritual road I've traveled as a rare cancer survivor.

Saturday, May 14, 2011


We are leaving for Washington DC tomorrow, our latest family vacation.  I'm glad we do that,we have a tradition of taking a week every year to go somewhere else as a family.  My kids are adults now, but still like our family time.  Lots of adventures!

Washington DC was my idea.  I've been there twice...once for an AACR conference and once to work on Capitol Hill with the PEW Foundation.  I'd never wanted to go to interest in politics or history, but the first time I went for the AACR conference, I fell in love with the city.  There are so many stories and so much trivia about the city that is fascinating. Twenty Smithsonian museums, all free.  It's a beautiful and clean city, with sculpture gardens and works of art everywhere.  I decided my husband and kids need to see DC at least once in their lifetime!  The last two times I missed the U.S. Horticultural Gardens and the Nation Zoo...we'll see them this trip...giant pandas!  I love that you can almost cross the streets and be in a different state.

We fly out tomorrow.  Another cool thing is that my ten year cancer-free anniversary will be while we are there...on the 16th.  Best way to celebrate it with the people who mean the most to me!  Can you believe I'm almost  decade past a terminal diagnosis???


Judy said...

Congrats Carolyn!!! Enjoy your trip and family togetherness! You are an amazing person giving all of us inspiration. Thank YOU! Judy

Karen Ebert said...

Hi Carolyn,
Congratulations on ten years. Very happy for you.
I keep you bookmarked, and pop in from time to time. I've communicated with you before, and thought I'd give you an update - sadly not such a positive one. I was diagnosed with stage IV signet ring appendix cancer in November of 2007. It recurred at 2 and 1/2 years, six more months of chemo. It recurred again at 3 and 1/2 years. We are now talking palliative. I've done some serious medical journal reading, and I can see that even the specialists say that two markers make for the worst prognosis: signet ring morphology and lymph node involvement. Two for two.
Keep up the good work you do - in a world swimming in pink ribbons, it helps to find anyone out there with the same diagnosis.

Alice R. said...

Mazel tov on a great anniversary! Looking forward to your 20th!

Alice R. said...

Mazel tov on a significant anniversary! Looking forward to your 20th and beyond!