My web site is devoted to medical and treatment information about this rare cancer. My blog is devoted to sharing what has been the more difficult part of the journey for me, the emotional and spiritual road I've traveled as a rare cancer survivor.

Sunday, May 22, 2011

Back Home

We are back from Washington was a busy vacation!  I had a list of things I wanted my family to see...the monuments, Union Station, Ebeneezer's Coffee shop, the National Zoo and botanical gardens adjacent to the Capitol....the last two are things I wanted to see on previous trips to DC but didn't have the time for.  Ebeneezer's coffee house is like a really nice Starbucks with a big basement that is used as a church.  It was formerly a crack house. Mark Batterson is the lead pastor there, and I've read most of his books.  I went to church in the basement on a previous visit.  Our current church is using his a s a model.  We saw the monuments twice; first on a 6 hour daytime tour that included lots of time at the monuments and an hour boat tour of the Potomic River.  We also went on a night tour when the monuments were lit up. 

I love DC trivia...there are no skyscrapers as there is a limit to the height of buildings (no new building may be more than 20 feet taller than the width of the street in front of it, or greater than 130 feet tall).  Because of that, many buildings have multiple levels of basements.  The Pentagon is the largest office building (I believe in the world).  It has 15 stories UNDER the building!  When I worked on Capitol Hill, many buildings had at least 5 underground floors.  Because they can't build up,space in DC is at a premium.  I haven't yet been at a hotel that has a pool.  An acre lot in DC goes for 10 million.  Union station is a train depot that used to be a mecca for the homeless and drug users.  The city remodeled it and now it's akin to a combination mall/train station with many restaurants and shops.  At Union Station there is a replica of the Liberty was replicated to include a typo on the original Liberty Bell...Pennsylvania is spelled with only one N.

We had a bit of time the last day...I had no more that I had wanted my family to see, so I left it up to them to do what they wanted our last half day.  My daughter wanted to go to the National Archive...I'd never thought to go there.  It turned out it was amazing.  We saw the original hand-written Declaration  of Independence.  No computers or typewriters used then.  Pen (feather quill pens) on sheepskin parchment.  We also saw  the original Constitution and Bill of Rights.  I actually saw George Washington and Abraham Lincoln's signatures....Abraham Lincoln had beautiful handwriting! So many signatures of people I've learned of in history classes and books.  It made them seem real, history came to life.

And now I am officially 10 years cancer-free!


Anonymous said...

Thank you for creating your website and blog. I was just diagnosed with mucinous adenocarinoma (I think that's what it is?), and your site has given me hope. Congratulations on 10 years.

Anonymous said...

Thank you for your blog. I'm really confused on a couple of things. Should i be worried if my oncologist is not taking more action other than removal of my appendix and part of my colon?

Carolyn Langlie-Lesnik RN BSN said...

My initial surgeon/oncologist wanted to just do the removal of the appendix and part of the colon (standard treatment for colon cancer). I did not agree to this surgery as my cancer was rare and they were unfamiliar with it, so I instead traveled to see an appendix cancer specialist (self-referred). I ended up having the cytoreduction surgery and peritoneal chemo almost 2 months after my diagnosis. I am so glad I did...I am 10 years cancer free! I feel all diagnosed need to see an appendix cancer specialist (I have several listed on my Physicians and Facilities page @ ).