My web site is devoted to medical and treatment information about this rare cancer. My blog is devoted to sharing what has been the more difficult part of the journey for me, the emotional and spiritual road I've traveled as a rare cancer survivor.

Tuesday, March 30, 2010

Survivor Stories

I have been working with several appendix cancer survivors in hope that they will write their stories for me to post to my website and blog. Alice recently posted her story, Alice's Story. I have other survivors 3-9 years out from diagnosis who have told me they will also write their stories. I will post links to their stories as I get them.

I am very greatful to those survivors who are willing to offer help and hope to the newly diagnosed, they are my heroes.

I truly stuggled to find hope when I was diagnosed. I loved cancer survivor stories then, though I read of no appendix cancer survivors. I never even knew of another diagnosed with my cancer when I was struggling with my long odds. Ours is a lonely cancer.

Again, I am so grateful to those who are working to help me with this project and will post stories as I get them!

3 comments:

trotterleg said...

Hi i need to get in touch with carol and get some feedback and write my story.
CAN SOMEONE EMAIL ME? I am Vicki my email is trotterleg@aol
Thanks soooo much

Carolyn Langlie-Lesnik RN BSN said...

Hi Vicki,

I saw your comment and emailed you...we desperately need survivor stories!!

Thanks so much!
Carolyn

Synderella13 said...

My mom is at Spectrum Health in Grand Rapids Mi receiving HIPEC as i write this. She was daignosed with appendix cancer in January 2009. Today I am a nervous wreck. I dont want to loose my mom and this procedure seems so "scary" - lack of better words. I dont want to loose her to either. Today is the first day that I've come across the website. I am hoping that we will be able to post her story here someday. Thank you. Ellen